Apologies for not updating the blog last night, tiredness set in!
Less than 24 hours ago, Aimi went into surgery again to have the remaining kidney removed. She had a Dialysis session beforehand and went into surgery about 12:30pm yesterday. The surgeon said the surgery went very well and Aimi seemed to cope fine during the kidney removal (Nephrectomy).
After an hour and a half – two hours, Aimi was taken to recovery room and by 3:30pm was back up in her room on the ward. On the first kidney removal, she spent a stint in intensive care, so it was very different this time. She didn’t even need a ventilator after to help her with air.
She had quite a settled night last night, only waking up grizzling a few times. She was administered painkillers and went back to sleep again. Her BP was at 98 this morning (without BP medication) and while morphine can lower the pressure, it is a bit different from the 130+ she was at during last week.
Her very large belly has already significantly gone down in size. There will still be fluid and swelling in there so we hope it will go down to a normal level more in the next few weeks. Again, the surgeon made a very neat cut and we hope it can heal as quick and without pain, as well as the other scar had.
To most, it would seem amazing that she now hasn’t any kidneys, but they both were so diseased. There were minute function in both and was causing a lot of problems. The very minimal urine output (tablespoon size every so often) will now get stored in her body along with the other fluid. As it has been doing, dialysis should catch up with the fluid and remove it from her bloodstream.
Please continue your thoughts and prayers to help Aimi recover from this surgery, it really helps and we all appreciate the support! Aimi is so strong for a baby so tiny and we hope the surgery means she is a step closer to coming home! Aimi will always fight ARPKD but for it to be more manageable makes all the difference.
As before, I will add some pictures to the post from over the last day or so.